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What happened to the money from the ice bucket challenge?
Ezra Klein explains the ice bucket challenge While local chapters got a significant share of the money, and spent it largely on support for the patients they serve, most of the money — $80 million — went to research.
Is ALS research underfunded?
It is an approach summed up by the slogan of the ALS Therapy Development Institute: “ALS is not an incurable disease. It is an underfunded one.”
Why is ALS incurable?
Currently, there is no cure for ALS and no effective treatment to halt or reverse the progression of the disease. ALS belongs to a wider group of disorders known as motor neuron diseases, which are caused by gradual deterioration (degeneration) and death of motor neurons.
Is there a slow progressing form of ALS?
The progress of PLS is more gradual and less devastating than that of ALS. Unlike ALS, PLS does not result in muscle wast- ing, and although it is disabling, it is not fatal. Some ALS specialists believe that PLS is on the ALS continuum and may not be a separate disease, but a very slow-progress- ing type of ALS.
Did the Ice Bucket Challenge help ALS?
The Ice Bucket Challenge, sometimes called the ALS Ice Bucket Challenge, is an activity involving the dumping of a bucket of ice and water over a person’s head, either by another person or self-administered, to promote awareness of the disease amyotrophic lateral sclerosis (ALS, also known as motor neuron disease and in the US as Lou Gehrig ‘s
What is Team Challenge ALS?
Team Challenge ALS is just one of the ways the Association is making a difference in the lives of people living with the disease.
Who started the ALS Ice Bucket Challenge?
The ALS Ice Bucket Challenge was started by Pete Frates and Pat Quinn in the summer of 2014. As people took part and challenged others to do the same, the movement spread exponentially, growing into a worldwide event. More than 17 million people took part, and $115 million was donated to the ALS Association to combat the disease.
What is the history of the Ice Bucket Challenge?
Elusive history. The “ice bucket challenge” blew up in late July when Pete Frates, a former Boston College baseball player, convinced some prominent people, including pro athletes, to take the challenge. While Frates is often credited with “creating” the challenge, it was around well before that.